Last Posted: Nov 14, 2021
- Real Stories from People Living with Hemophilia – Carrie
CDC, November 2021 - Real Stories from People Living with Sickle Cell Disease: Rae Blaylark
CDC, November 2021 - My Inherited Condition Has Led to a Life and Career I Love
MA Lewis, ASCO Post, October 2020 - My Brother Died of Brain Cancer. 20 Years Later, I Had It, Too. I was told it didn’t run in families. Was it just chance?
S Hashmi, NY Times, October 20, 2020 - “My disability has become an ability”
E Manna, Nature Medicine, August 24, 2020 - Real Stories: Living with Spina Bifida
CDC, 2019 - How I wish people talked about living with a BRCA mutation
E Stallings, Hello Giggles, June 26, 2019 - When a Rare Mutation Causes a Rare Disease: Jacobs Story
R Lewis, PLOS Blogs, June 20, 2019 - When a Rare Mutation Causes a Rare Disease: Jacob�s Story
R Lewis, PLOS Blogs, June 20, 2019 - 'Out of the Blue' Diagnosis Linked to a Family History of Cancer Now Empowers Others
S Friedman, Cure, June 12, 2019 - 7 Things I Wish I Had Known About Being 'Rare'
K Moore, The Mighty, March 2019 - Avery Watts and family fighting for her heart
J Heim, HM Media, March, 2019 - Real Stories from People Living with Hemophilia
CDC, 2019 - I Got A Double Mastectomy After A Genetic Test. Then I Learned The Results Were Wrong.
M Boesen, Huffington Post, February 22, 2019 - It took more than a decade to explain the sudden death of my precious teenage son
K Gardner, the Guardian, February 22, 2019 - Ryans Story
The FH Foundation, February 14, 2019 - I had Lynch syndrome for 30 hours
E Matloff, Forbes, February 12, 2019 - Emily and Carolines Story
CDC Division of Cancer Control and Prevention, 2019 - Saving my family from the deadly consequences of familial hypercholesterolemia
The FH Foundation, YouTube 2019 - One Couples Tireless Crusade to Stop a Genetic Killer
Wired, January 14, 2019
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Disclaimer: Articles listed in the Public Health Genomics and Precision Health Knowledge Base are selected by the CDC Office of Public Health Genomics to provide current awareness of the literature and news. Inclusion in the update does not necessarily represent the views of the Centers for Disease Control and Prevention nor does it imply endorsement of the article's methods or findings. CDC and DHHS assume no responsibility for the factual accuracy of the items presented. The selection, omission, or content of items does not imply any endorsement or other position taken by CDC or DHHS. Opinion, findings and conclusions expressed by the original authors of items included in the update, or persons quoted therein, are strictly their own and are in no way meant to represent the opinion or views of CDC or DHHS. References to publications, news sources, and non-CDC Websites are provided solely for informational purposes and do not imply endorsement by CDC or DHHS.